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Help4HD

Help 4 HD Live!

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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with you own physician for advice about any medical recommendation.

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To participate in the FOCUS Online study, please visit the following link: https://forms.office.com/r/eXfRT1ZanZ. Matthew Roché, PhD, is the Director of Outcomes Research. Matt earned his PhD in clinical psychology at State University of New York at Binghamton and had pre- and post-doctoral appointments in the Division of Schizophrenia Research at the University of Medicine and Dentistry/Robert Wood Johnson Hospital and Rutgers University. After completing his training, Matt served in Research Specialist and faculty capacities at Rutgers where he worked collaboratively with pharmaceutical, private research, and start-up firms; worked on scale development for clinical phenomenon in schizophrenia and schizophrenia-spectrum disorders; assisted in protocol development for projects evaluating the role of Huntington's disease, schizophrenia, and Parkinson's disease on retinal cell functioning; and, developed and led trainings on clinical rating scales and diagnostic interviewing. In addition, Matt taught in various graduate (masters and doctoral) programs at Rutgers. Matt is currently an Assistant Professor in the Department of Psychology at New Jersey City University. Matt joined CHDI in 2018.
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Help4HD

The Help 4 HD Resource Database has a resource called mRelief, which is a nonprofit that helps you determine eligibility and sign up for SNAP and other supplemental programs by using a quick survey via text message. You can text... more
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Help4HD

Update about Sage Therapeutics with Lauren Holder
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Help4HD

If you'd like to check out the video, here's the link: https://youtu.be/NTiqiAeBMOw
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Help4HD

Please visit the Rare Patient Voice website for more information, or reach out to Lauren Holder at [email protected] WES MICHAEL Founder and President, Rare Patient Voice Wes Michael founded Rare Patient Voice in 2013 to give... more
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Help4HD

Lauren Holder recently did a webinar with HDYO's Jenna Heilman, Prof. Hugh Rickards, and HDYO Ambassador Molly about breaking down barriers when it comes to access to a potential treatment. You can watch the full video here:... more
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Help4HD

Our Lived Experience (Panel from Help 4 HD Symposium)
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Help4HD

Helpful information on being prepared for a disaster: https://www.ready.gov/disability Information about FEMA: https://www.disasterassistance.gov/ Here are some tips for people with... more
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Help4HD

HD Uncut: Thoughts from Strasbourg
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Help4HD

End of Life: The Caregiver Perspective, Part 2
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